Saturday, March 13th, 2010 at
9:48 am
I recently took my second set of shots on Stelera on 3/26/10 and since this past weekend I’m in full blown psoriasis out break. I was on Raptiva and Enbrel for the psoriasis and psoriatic arthritis until they took Raptiva off the market.
Sterela was meant to replace these other drugs and be the new treatment. I’m so disappointed and have no clue what to do. I’ve tried every drug and creams on the market to treat this disease and nothing but those two drugs I was previous on worked. Does anyone have any suggestions on what to do? My Dermatologist is out of town and saw his PA this week and she had nothing to offer me but cream for the itching.
Wednesday, January 27th, 2010 at
12:22 pm
It’s weird to have arthritis at a young age, but that’s what psoriasis does
I didn’t have many lesions so I though I was so lucky, but I’ve started hurting more, and researching and I know I have the type that attacks the neck and spine.
Tuesday, November 10th, 2009 at
2:37 pm
Im 38 & I have joint pain in my fingers, toes, and now my left knee, as well as in the back of my neck. I have had psoriasis for about 15 yrs and everything points to psoriatic arthritis.
Wednesday, October 14th, 2009 at
6:05 pm
I am on a low sodium diet. Here is why–I have quite a few health problems–including, but not limited to, hypothyroidism, hypokalemia (low potassium), hyperaldesteronism (overactive adrenals), hyperhidrosis (excessive sweating), kyphosis (a form of scoliosis), Fibromyalgia, major depression, Psoriasis, Psoriatic Arthritis, Sleep Apnea, Premature ventricular contractions, Narcolepsy, severe Edema issues, and no telling what all else! On top of all of that, I was born deaf-blind due to Congenital Rubella Syndrome–mom got the german measles when she was preggers with me. So as you can see, I got quite a few problems……so it is imperative that I follow a strict diet with as little sodium as possible.
I hope somebody can help point me in the right direction so I can finally enjoy macroni and cheese again. TIA!
Thursday, October 8th, 2009 at
11:57 pm
I have been experiencing severe joint pain in my knees, wrists, fingers, toes, and ankles. I have been to the rheumatologist numerous times, had blood drawn 3 times. The doctor doesn’t seem to think that it is rheumatoid arthritis or osteoarthritis. He thinks it may be psoriatic arthritis, which I don’t have psoriasis, just the genetic disposition for it. A couple people have suggested that I have my thyroid checked because joint pain can be caused by an underactive thyroid.
I am 22 years old, female, feel tired constantly, irregular menstrual periods, severe menstrual cramps, dry skin, brittle hair and nails, all of which I’ve seemed to find to be hypothyroid symptoms.
I guess what I really want to know is if anyone with hypothyroidism has experienced severe joint pain due to the hypothyroidism? Thanks!
Wednesday, October 7th, 2009 at
10:05 pm
I am starting a team to walk in the National Psoriasis walk for awareness and I need help with cute/ funny names. I have psoriasis and psoriatic arthritis. The other girl has just the arthritis with no visible psoriasis (yet). we are a team of fun loving blondes. the other girls on the team are friends. I came up with a few ideas, but the need more to them. Please help. Here is what I have so far:
inflamed
inflamed blondes
flakey blondes
?????
Tuesday, September 29th, 2009 at
1:14 am
I have a few health problems that are chronic and very, very expensive. I have psoriasis and psoriatic arthritis, and I take Remicade and Methotrexate for it. If I didn’t, my body would be covered in red lesions (I’ve been covered up to 70% of my body) and I’d be walking with a cane, preparing to have hip replacement. I know I need this treatment. Remicade is EXTREMELY expensive. My doctor’s office used to let me make payments…but they’ve changed their policy and you have to pay upfront. I have insurance, but I have to pay a very large deductible. This, plus the daily meds I take for the condition, plus meds for high bp, depression, and GERD, cost a helluva lot of money.
I had bronchitis for three months starting in October of last year. Long story short, they discovered I have a slightly deviated septum and an old infection in my sinuses. I took meds, and now I’m supposed to have a second CT of the sinuses…and I know that they’re going to find that I’m no better. The next step could be surgery. I’m feeling EXTREMELY guilty about how much my problems literally cost my family. I quit smoking and started eating better…but it’s not helping any of my conditions get better. This sinus thing is not a life or death situation here, or a question of mobility like my arthritis is. I’m tempted to blow it off. Yes, I have a chronic sore throat. No, I really can’t sing anymore…but I’m not a professional, I just sing at church and civic theater. I get so worried when I think about how much all these medical things cost, and with the economy the way it is, I know we could go broke in no time. What would you do if you were me? How important is it to fix this?
Wednesday, September 16th, 2009 at
3:12 pm
I have severe plaque psoriasis and psoriatic arthritis. I use Enbrel, an expensive biologic drug that works for the arthritis but not so much the skin stuff- especially scalp. I alternate coal tar shampoo and Sal acid shampoo, used topical steroids to no avail. Any advice?
I know, I wish coal tar worked. The thing about UV is I would need to shave my lovely locks (not really). I haven’t seen my scalp but I imagine it is pretty pitted and scarred from the chunks of dead skin I pick off of it constantly (not exaggerating) so I would rather not shave my head- though tempting.
Tuesday, September 15th, 2009 at
1:46 pm
sadly i have been diagnosed with ankylosing spondylitis which is a chronic and often progressive condition that primarily involves pain and inflammation of the joints of the spine. AS affects the joints between the vertebrae and the sacroiliac joints (the area where your spine meets your pelvis). The dr. told me i have to be on ENBREL which is a type of protein called a tumor necrosis factor (TNF) blocker that blocks the action of a substance your body’s immune system makes called TNF. People with an immune disease, such as rheumatoid arthritis, juvenile idiopathic arthritis, ankylosing spondylitis, psoriatic arthritis, or psoriasis, have too much TNF in their bodies. ENBREL can reduce the amount of active TNF in the body to normal levels, helping to treat your disease. But, in doing so, ENBREL can also lower the ability of your immune system to fight infections. and its a life treatment. Has anyone been on ENBREL and if so how did you feel about it? I’m soo scared please help
Tuesday, September 8th, 2009 at
6:19 pm
I have had severe joint pain and fatigue(along with other symptoms) for two years now. i feel like NO ONE is listening to me. I think i have an auto immune disorder that no one has diagnosed yet. I have high WBC counts, very high C-reactive protein levels, and very high sed rates. my ANA was negative, lyme disease neg, celiac disease neg, sjorgens syndrome neg, rheumatoid arthritis neg….I do have a strong family history of psoriasis and arthritis though. does anyone know about psoriatic arthritis? or have any other ideas about other auto immune disorders that i might have? i saw a rheumatologist and was treated horribly. i am never going back. i feel like the doctors are missing something. i would be eternally grateful if someone in the medical field could help me with this. thank you